Welcome to the NICHD Ideas Community

The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) invites our valued stakeholders to share feedback on important research topics. We thank you for helping to inform the future of NICHD research.

In this community, you can submit new ideas, vote or comment on existing ideas.

To submit an idea, select the Submit New Idea button in the navigation sidebar. You’ll be asked to add a title and to choose a campaign for the new idea. You will also have the option to add tags to your idea.

To vote on others’ ideas, visit the Ideas page and select the up or down arrows for the idea you wish to vote on.

To add a comment, select the box below the idea you want to comment on.

You can view ideas sorted by Campaigns from the navigation sidebar. To return to the homepage, select Ideas.

NICHD STRIVE for Change

Get Localities Involved

There is a foundation that provides funds to institutions that partner with communities as an Institutional Challenge Grant. Since funders often drive research directions I think this could be a way to revolutionize data production towards community partnered solutions. This leads me to three similar ideas to that. 1. Grants for organizations to work with scientists to test and if good outcomes, scale their work. What's... more »

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NICHD STRIVE for Change

Key Idea, Workshop 2: New qualitative and quantitative measures needed to capture intersectionality

To ensure health disparities research fully captures intersectionality, new assessment tools are needed that are specific to developmental periods and various social identities and that encompass diverse ethnic-racial groups. Qualitative and quantitative research methods are both valid means to capture high quality data.

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NICHD STRIVE for Change

Key Idea, Workshop 2: Grant process changes can increase funding access for minoritized scientists

Significant changes need to take place at an institutional level to advance health disparities research and methods development, including addressing procedures in the grant review and funding processes that systematically limit minoritized researchers' access to grant funding and leadership roles.

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NICHD STRIVE for Change

Resources for Barriers to Diversity Recruitment trending idea

Change only occurs when we first recognize the problems.   Diversity, equity, and inclusion can and should include 'many' even all. Yet grant applicants really have  are quite limited in the resource they can build into an application to improve diversity representation in their sample. We must encourage applicants to build in specific ideas and resources to address diversity

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NICHD STRIVE for Change

Including target population in research planning: improving validity and scalability

Any research efforts should include members of target community and their families in the early planning, especially with respect to proposed recruitment, information-gathering, treatment strategies (if appropriate), and analysis. The use of focus groups and consultants will improve the validity and scalability of the research findings. And finally, the ultimate research findings should be shared with those who participated... more »

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NICHD STRIVE for Change

NICHD needs to support Researchers with Neurodevelopmental Conditions trending idea

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions.  Imagine research on women conducted primarily by men.  Imagine research on Black and African Americans conducted primarily by Whites.  Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals.  Researchers with neurodevelopmental... more »

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NICHD STRIVE for Change

Clear distinction needed between Eugenics Vs. Health Related Research

Many people with neurodevelopmental conditions face an increased risk of physical health disparities.  However, much of the research on neurodevelopmental conditions is focused on the cause, cure, prevention, and treatment of neurodevelopmental conditions instead of on the co-occurring health conditions.  Many people within some populations with neurodevelopmental conditions (e.g., Autism, Down syndrome, etc) consider... more »

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NICHD STRIVE for Change

Physical Health Disparities Research for Adults With Neurodevelopmental Disabilities

Similar to the INCLUDE initiative for Down Syndrome, we need NICHD to prioritize physical health disparities research in Adults with Neurodevelopmental disabilities that *do not have* a co-occurring intellectual disability.  Adults with neurodevelopmental disabilities (e.g., Autism, Cerebral Palsy, Schizophrenia, etc) face disparities in health outcomes and healthcare.  Autistic Adults, for example, are at a higher risk... more »

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