NICHD STRIVE for Change

NICHD needs to support Researchers with Neurodevelopmental Conditions trending idea

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There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions.  Imagine research on women conducted primarily by men.  Imagine research on Black and African Americans conducted primarily by Whites.  Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals.  Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions.  They also have insight, and should have power regarding, ETHICS in health-related research for these populations.  For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities.  People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields.  People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

1. What obstacles impede advancing health disparities research for NICHD populations?

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions. Imagine research on women conducted primarily by men. Imagine research on Black and African Americans conducted primarily by Whites. Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals. Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions. They also have insight, and should have power regarding, ETHICS in health-related research for these populations. For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities. People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields. People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

2.What innovative or novel approaches to research could be leveraged to mitigate health disparities in NICHD populations?

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions. Imagine research on women conducted primarily by men. Imagine research on Black and African Americans conducted primarily by Whites. Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals. Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions. They also have insight, and should have power regarding, ETHICS in health-related research for these populations. For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities. People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields. People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

3. What are the best opportunities to broaden community engagement in the research process?

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions. Imagine research on women conducted primarily by men. Imagine research on Black and African Americans conducted primarily by Whites. Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals. Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions. They also have insight, and should have power regarding, ETHICS in health-related research for these populations. For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities. People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields. People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

4. What are some examples of community engagement models to strengthen health disparities research efforts (such as models for partnerships, collaboration)?

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions. Imagine research on women conducted primarily by men. Imagine research on Black and African Americans conducted primarily by Whites. Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals. Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions. They also have insight, and should have power regarding, ETHICS in health-related research for these populations. For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities. People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields. People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

5. What resources (e.g., tools, technology, human capital) are needed to advance the field of health disparities research for NICHD populations?

There is a lack of researchers with neurodevelopmental conditions who investigate health-related disparities in people with neurodevelopmental conditions. Imagine research on women conducted primarily by men. Imagine research on Black and African Americans conducted primarily by Whites. Imagine research on the LGBTQIA+ community conducted primarily by cis-gendered heterosexuals. Researchers with neurodevelopmental conditions have insights on the nature, causes, and solutions to health-related disparities in populations with neurodevelopmental conditions. They also have insight, and should have power regarding, ETHICS in health-related research for these populations. For example, many people from some neurodevelopmental disability populations (eg., autism, Down syndrome) view research on the cause, cure, prevention and treatment of the neurodevelopmental condition as eugenics research yet, these same people are enthusiastic about research that can improve outcomes in physical health and healthcare disparities. People with neurodevelopmental conditions are marginalized in society and face dismal outcomes in education and employment, yet many have the potential to become excellent research scientists if provided with the proper accommodation and supports. First, we need to be actively encouraging people from these populations to pursue research in this area, in a similar way that we seek women and other marginalized populations to pursue STEM fields. People with Neurodevelopmetal conditions may need additional accommodations, such as more TIME on training grants, graduate and grant funding for a manuscript editor, ergonomic equipment, assistance with time management or material organization, for a personal attendant during graduate school and, possibly, beyond, and other resources.

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